ADHD is Real National ADHD Awareness week
 

Survey headlines:

Over a third of ADHD children officially excluded from school New findings mark start of first ever National ADHD Awareness Week

  1. ADDISS has surveyed over 500 parents of children with Attention Deficit Hyperactivity Disorder (ADHD)
  2. 39% reported that their child had been ‘fixed term’ excluded from school as a result of their condition, with 11% excluded permanently 1
  3. Almost two thirds of parents said their child’s ability to achieve at school was ‘very affected’ by their ADHD
  4. 67% felt they miss out on positive learning experiences 1

See full survey

Why is ADDISS launching this campaign?

Launched by ADDISS and the 22 parent support groups in the ADDISS Affiliation Network, National ADHD Awareness Week, 18th-24th September 2006, is calling for:

  • Better understanding of why ADHD children behave as they do and greater acceptance of their needs
  • Improved access to resources and support for children with ADHD and their families
  • More focus within the school system to ensure the Government pledge that ‘Every Child Matters’ also applies to ADHD children

Support from other organsations

ADDISS has been inundated with messages of support from other organisations and individuals who are working with us to foster a greater understanding of ADHD and help us to achieve our aims, listed above:

Professor Eric Taylor, Institute of Psychiatry,
King’s College London

“I very much welcome the initiative of ADDISS in getting the voice of people with ADHD and their carers to be heard. They bear the weight of the problems; too often, their concerns are belittled by theorists; they deserve every attention in this week of raising awareness.”

NSPCC
Chris Cloke, head of child protection awareness for the NSPCC says:
"The NSPCC is pleased to support ADHD Awareness Week. We recognise that Attention Deficit Hyperactivity Disorder can place considerable stress on families and that greater understanding and support will benefit the children involved."

Youth Justice Board
The Youth Justice Board gives its support to the UK's first National ADHD Awareness Week. Bill Kerslake - Head of Policy at the YJB states.
“YJB research published in 2005 found that 31% of young people in the Youth Justice system had a mental health need, 3 times higher than the general population, of which 7% had problems with hyperactivity. While hyperactivity is only an indicator of a possible diagnosis of ADHD, it is critical that Youth Justice and Child and Adolescent Mental Health services are able to identify and work with young people with ADHD. This is because associated features in young people with ADHD can include: impaired attention, poor concentration, impulsivity, anti-social behaviour, learning difficulties and early substance misuse. ADHD can be successfully managed through specialist intervention and treatment, so it is important that these young people are identified early and that they and their families receive the support they need.”

Contact A Family
“Our national freephone helpline gets many calls from parents of children and young people with ADHD. They are desperate for help and support. Many complain that local agencies will not or unable to meet the needs of their child. Some families feel very alone and in addition to giving them practical advice, Contact a Family puts them in touch with local parent led ADHD groups for support. We also encourage parents to work with organisations such as ADDIS and Contact a Family to bring about real improvements in the lives of children and young people affected by ADHD.” Francine Bates, Chief Executive

Advisory Centre for Education
“The Advisory Centre for Education (ACE) offers independent advice to parents and carers of children in state education in England and Wales. Our vision is ‘a fair education for all’. We aim to provide the information, support and high quality legal advice that parents and carers need to help their children at school, particularly when there are problems. Founded in 1960, ACE is a registered charity.

“Many of the children we hear about on our advice lines are in trouble at school because of lack of recognition of and support for their difficulties. We are very aware that ADHD seems a particularly difficult area for schools, especially those whose rigid rules do not accommodate behaviour arising from this disability. We hope the Government will offer constructive clear solutions to schools in the new guidance on behaviour policies due out in autumn 2006. Schools can and do make a difference if they work in partnership with families.

“ACE supports ADHD Awareness Week and hopes that it will raise the profile of the problems these families face and enable the dissemination of good practice to help families and schools.”

Network 81
“Standard education in this country does not meet the needs of children with ADHD. People need to think outside of the box when dealing with these children. Currently, teachers do not receive enough training about ADHD and the condition is not adequately recognised. In addition, what we see when a child with ADHD is in the classroom is just the tip of the iceberg – parents have to live with the rest.” Eirwen Grenfell-Essam, Chair of Network 81

Adders.org
"the condition of ADHD is often shunned by people as being an excuse to let parents off the hook in their view - However ADHD is a Real Condition that affects children and adults alike. The affect this has on the child or adult has a major impact on all aspects of daily life. ADHD is not an excuse it is a contributory factor that needs to be taken seriously by professionals and lay people alike. Those affected by ADHD deserve the right to appropriate treatment options and accommodations just the same as any other person with any other medical condition.The members of the Adders.org forum boards tell the real story of living with ADHD

"adders.org supports the ADHD Awareness Week - ADHD is REAL and hope that this awareness campaign will raise more awareness to ADHD to make people more aware of the impact of this on families and individuals."
Caroline Hensby founder Adders.org

 

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